Day +18 discharged

What a great feeling I am out of hospital ! not home as I need to stay near the hospital for a number of weeks for close monitoring and straight back in if I get a temperature or any sniffles etc.

Discharge took the whole day theres a lot to sort out, you need to see the doctor, pharmacist and numerous other people then you have to wait for all the paperwork and your medications. My bag of medications seemed massive there is twenty two different medications to take most of them three times a day. A diary is a must! the medications will slowly decrease as my body gets stronger.

One of the main medications is cyclosporin an immunosuppressant drug to help prevent graft versus host disease. Then theres anti-sickness, prevention of viral and fungal infection, vitamin supplements, prevention of bleeding, prevention of blood clots, stomach protection, pain relief and alongside all these you also have lots of mouthwashes and nasty tasting solutions to try and keep your mouth from developing sores.

The day after discharge I was back at the hospital for blood checks and a nebuliser of pentamidine I believe this is to help protect your lungs from infection you have this once a month, it tastes vile but only takes about 30 minutes, you just breath it in through a tube.

Next week I have two days at the hospital for checks and hickman line maintenance this will be the case for a few weeks, also as a christmas 'treat' I will be having a bone marrow biopsy the night before christmas eve and every month until my marrows looking a bit more normal.