Today I will be having my 9th and 10th blood transfusions, unfortunately the immunoglobulin treatment didn't work and my body is still producing too much of a certain protein which destroys the blood cells.
We are waiting on a different medication to try but this has had to be applied for as it is not yet licensed and needs funding so there is a lot of paperwork etc. The new medicine will consist of once a week transfusions for four weeks.
If at the end of that It hasn't worked they will probably need to take my spleen out, which i’d rather keep if possible! So its another boring week for me in hospital but hopefully I am on the way to being sorted.