After three weeks I am finally out of hospital, the rituximab treatment is looking promising as I am destroying blood cells at a slower rate and I still have two infusions left to go.
After thinking my acne like skin problems were a reaction to the immunosuppressants the dermatologists are now not sure as the skin is getting worse and my cyclosporin dose has been reduced right down. They have taken a biopsy from my face to see if that shows anything as swab tests have shown nothing apart from that it isn't an infection or viral, I thought they would take a small bit of skin with a needle but no they chop a bit off with scissors and stitch it up!
My hair is slowly growing back but it is all growing at different lengths and thickness I will have a mohican at this rate.
So with the recent hiccup with my blood I am back to having to go to London every week for a while. This week I will be having a rituximab infusion, blood checks, line care and pentamidine nebuliser as well as seeing a consultant.