After last week my rash continued to spread and get worse, I developed more joint pain and nausea. It is now almost certain that I have graft versus host. This has meant an increase in my immunosuppressants and some new medications ( to add to the long list) its a bit disappointing as I was heading towards being free of the immunosuppressants, they make me nauseas and tired also rather grumpy!
Graft versus host disease is where the donor cells react against your own, my GVHD is classed as chronic as it has happened after the first 100 days since transplant.
How much this will affect me and for how long is unknown but on the plus side it means my donor cells are fighting whats left of mine and i may not need that top up of donor cells. We will know for sure after my next biopsy.
In other news the weather has been fantastic although I have to be in the shade and can only wear my ugg boots due to two swollen sore toes I have still enjoyed it.