This week in London was my dermatology review, it went well and they are happy for me to stop my skin antibiotics and see how it goes. This is great the tablets smell and taste horrible! They cant do anything about the scarring on my face for now but hopefully will be able to in the future.
Like last week I am still neutropenic so an early bone marrow biopsy is on the cards for next week, my least favourite test, but hopefully it will shed some light on whats going on. Also I may need to have monthly immunoglobulin infusions to help prevent infection but we will see when I have my bloods checked.
So as normal waiting on lots of tests camera in stomach, bone marrow biopsy, bone density test, hand ultrasounds and the usual blood tests, its like a full time job and lots of travelling to and from London I know it far better than I ever thought I would and am now a regular customer at shops and hotels! even the staff on the train recognise us.