Merry Christmas
Its nearly Christmas! I’ve been very organised this year and bought and wrapped all presents early. Internet shopping has been a godsend,...
Last top up
The last of my frozen stem cells from my generous donor has been used up this week, from what my consultant said this will be my last...
Fourth time lucky?
It has taken some doing but I finally have the results from my last stem cell top up, It is made up of three parts two have gone up...
Birthday blues
In my last blog post I was waiting for my chimerism results to see about the next stem cell top up if it is needed, unfortunately my...
Explaining my disease GATA 2 deficiency
Stem cell top up number three all went ok another long day but here’s hoping third time lucky! I will be having blood tests next week to...
Broken record broken toe
So the 8 week results are in for my chimerism blood test which shows if my last DLI donor top ups are working. Like a broken record I'm...
Waiting and more waiting
Just back from another trip to Kings College Hospital, since my last blog post I have had my second stem cell top up DLI treatment. There...
Stress and updates
It has been a while since my last blog post but like everyone sometimes life takes over and before you know it its been longer than you...
Donor top up
Week before last I finally had my first dose of DLI donor stem cell top up. It all went fine but was as usual a very long day. You start...
New Year!
Bit late but happy new year everyone! Christmas was as eventful as ever with illness etc, maybe next year will be a relaxing one. My stem...
