Free of the Hickman
This week I have finally after it being in for 8 months! had my Hickman (central venous catheter) line out. The procedure itself is not...
Hamster wheel & chipmunk face
Well it seems like I'm on a hamster wheel at the moment going round and round, appointments, tests, pain and nausea, you just have to...
Missing out
One of the things you might not think about with a stem cell transplant is all you have to miss out on socially. Whether it be because...
Feeling positive
Another trip to London done, my biopsy results were in and are looking good as is my blood at the moment always a relief. The chimerism...
Biopsy and escaping for another week
This week was my least favourite thing of the bone marrow biopsy, all went well apart from the pain. My biopsy results will take a couple...
6 months
188 days just over six months since my transplant, I have had quite a few complications along the way so recovery is slow but Im getting...
Graft versus host disease
After last week my rash continued to spread and get worse, I developed more joint pain and nausea. It is now almost certain that I have...
The good, the bad & the ugly
The good news is my heamoglobin blood results are continuing to increase, so it looks like the rituximab is working for now, no more...
Rituximab and stitches
After three weeks I am finally out of hospital, the rituximab treatment is looking promising as I am destroying blood cells at a slower...
Third week in hospital
On Tuesday I will be having my second infusion of Rituximab, although the first dose hasn't had a magical effect and stopped the...
